I created this site as a resource for people looking for more information about biliary atresia. Due to a recent diagnosis in my family - see Will - I began scouring the Internet for any information on this previously unknown condition. Since biliary atresia is so rare - only 1 in 15,000 newborns develop the condition - I was unable to find one consolidated resource, so I decided to build one.
Biliary Atresia Information about the Biliary Atresia condition. American Liver Foundation - Information about Biliary Atresia Facebook - Biliary Atresia Awareness and Research (BAAR) NIH Rare Diseases - Biliary Atresia Boston Children’s Hospital - Conditions - Biliary Atresia Cincinnati Children’s - Biliary Atresia Patient Information Children’s Hospital of Philadelphia - CHOP PubMed - Technical Medical resource The Kasai Procedure Information about one of the most common treatments for Biliary Atresia.
Biliary Atresia At a basic level, Biliary Atresia is a condition in infants where the liver can’t properly drain bile. This inability to drain bile causes the liver to scar and eventually fail, if left untreated. A thorough definition of Biliary Atresia can be found at The American Liver Foundation and the U.S. Department of Health and Human Services.